Young Onset Resources

COVID 19 Update: This time of social distancing does not have to mean social isolation. We have compiled a list of online support groups and discussion boards from our national and local partners for easy access in one, easy to find place. These programs can help keep you engaged and connected with the community from right inside your home.

Please check back as we will continue to add resources as they become available.

Young Onset Support Groups

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Get Out! Happy Hour Online

Get Out! Online is a live, interactive social time hosted by PMDAlliance young onset ambassadors living with PD. No formal agenda, just a chance to connect with others like you from the comfort of your own home. 

       Date: 1st and 3rd Wednesday of each month
       Time: 6:30 pm

Launch the Get Out! Happy Hour Online™ Support Group for Care Partners here

 

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PD Connections

PD Connections is a community for people with Young Onset Parkinson’s disease. Each month the group discusses topics that are unique to people with young onset and provide an opportunity to connect with others going through a similar experience.

          Date: Third Thursday of each month
          Time: 7:00 pm

This group is available with a free PDWELL membership. Register here for access to this resource.


Young Onset Webinars

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Davis Phinney Foundation YOPD Council Webinar Series:

        August 20 – Work, Money, Meaning, and Parkinson’s

        September 17 – Exercise, Community, and Parkinson’s

        October 15 – Disability, Insurance, and Parkinson’s

        November 19 – Mental Health, Death and Dying, and Parkinson’s

        December 17 – Medications, Side Effects, and Parkinson’s

Register for the YOPD Council Webinar Series here!

Fall 2020 Expert Briefing Series: Young Onset Parkinson’s Disease (YOPD)

        September 15 – Not What I Planned for Me or My Family
        Register here

        October 27 – Working it Out: Managing Parkinson’s in the Workplace
        Register here

        November 10 – Partnering: The Dance of Relationships and Romance 
        Register here


Podcasts

Michael J Fox Foundation: Podcast: Young Onset Parkinson’s Disease

Parkinson’s Foundation: Podcast Episode 10: Young- Onset Parkinson’s 101


Forums

Parkinson’s Foundation: PD Conversations: Young Onset Discussions


Articles and Websites

Parkinson’s Nebraska- Young Onset Parkinson’s Disease

The Davis Phinney Foundation – A Primer on Young Onset Parkinson’s Disease (YOPD) and What’s Coming Next

Parkinson’s Foundation – Young Onset Parkinson’s

Michael J Fox Foundation – Young Onset Parkinson’s Disease


Click below to explore more resources:
Exercise classes
Support Groups
Therapy
Online Resources
Care Partner Resources