WELCOME 2026!

November=Reminders for the Holiday Season

As we move into the holiday season, it’s a meaningful time to stay connected with loved ones. The colder months and busy schedules can make isolation more likely, which can take a toll on mental and emotional health. Reaching out to family, friends, or support groups can make a world of difference. Establishing a daily routine, whether it’s attending exercise classes, setting aside time for relaxation, or keeping social commitments. This can help bring structure, balance, and a sense of purpose. Parkinson’s Nebraska is here to remind you that you are not alone, and small steps toward connection and consistency can lead to lasting well-being.

Here are some tips for you and your loved ones:

Maintain Routine and Medication Schedule:
The holidays often bring changes in routine, travel, and social events that can disrupt normal medication times or daily habits. It’s essential to stick to a consistent schedule for taking medication, meals, exercise, and rest to help manage symptoms effectively.

Plan for Energy and Mobility Needs:
Fatigue and movement challenges may increase during busy gatherings. Allow for extra rest, avoid overcrowded spaces, and plan ahead for accessibility (such as seating, handrails, and short walking distances). Encourage breaks and gentle movement to stay comfortable.

Prioritize Emotional Well-Being and Connection:
The holidays can be emotionally challenging, especially if dealing with stress, fatigue, or feelings of isolation. Staying connected with family, friends, or support groups, even virtually, can boost mood and reduce loneliness. Loved ones should be patient and supportive, understanding that Parkinson’s symptoms may fluctuate.

Happy Holidays!

October=What to know about Dementia and Parkinson’s Disease

Parkinson’s disease and dementia are closely aligned neurological disorders that share overlapping pathological, clinical, and cognitive features. Parkinson’s disease (PD) primarily affects movement due to the degeneration of dopamine-producing neurons in the substantia nigra, leading to symptoms such as tremors, rigidity, and bradykinesia. However, as the disease progresses, many individuals also experience significant cognitive decline, reflecting the spread of neurodegeneration beyond motor regions of the brain. This overlap highlights that PD is not solely a motor disorder but a complex neurodegenerative condition with cognitive and behavioral implications.

Dementia, particularly Parkinson’s disease dementia (PDD) and dementia with Lewy bodies (DLB), shares many clinical characteristics with Parkinson’s disease. Both conditions involve the accumulation of Lewy bodies—abnormal clumps of the protein alpha-synuclein—in brain cells, which disrupt normal neuronal functioning. The distinction between PDD and DLB is largely based on the timing of cognitive symptoms relative to motor impairments, but their underlying pathology and symptoms such as memory loss, confusion, visual hallucinations, and slowed thinking are remarkably similar. This alignment suggests that Parkinson’s disease and dementia exist on a spectrum of Lewy body disorders, underscoring the interconnected nature of motor and cognitive degeneration within the brain.

At Parkinson’s Nebraska we understand how hard it can be to navigate Parkinson’s disease, so speaking to a professional will greatly help to understand the pathways necessary to help a patient with Parkinson’s disease and dementia.

Please contact us for help! info@parkinsonsnebraska.org

September=Safety

9/2/2025

September is our featured month for safety! Below is an overview on ways to keep yourself or your patients safe in the home.

Providing safety in the home for individuals with Parkinson’s disease involves creating an environment that minimizes fall risks, supports mobility, and accommodates changes in motor control. Parkinson’s can cause tremors, muscle rigidity, balance issues, and slower movements, making everyday tasks potentially hazardous. To reduce these risks, it’s essential to keep floors clear of clutter, secure rugs, and ensure adequate lighting in all rooms and hallways. Installing grab bars in bathrooms, using non-slip mats, and arranging furniture to allow wide pathways can further enhance safety.

Many people also benefit from adaptive equipment such as raised toilet seats, shower chairs, and walking aids to maintain independence while reducing injury risks. Safety measures should also account for the progressive nature of Parkinson’s disease. As symptoms evolve, individuals may require additional modifications, such as stairlifts, handrails, or voice-activated devices to assist with daily routines. Caregivers and family members play a crucial role in monitoring changes in mobility, cognitive function, and medication side effects that could affect safety. Regular home assessments by occupational therapists or physical therapists can help identify hazards and recommend personalized solutions, fostering a safe, supportive living environment that promotes both independence and quality of life. Our mission is to provide education, support and resources to do this!

8/1/2025

Connecting with a well-informed and experienced neurologist is crucial for individuals diagnosed with Parkinson’s Disease (PD), a complex, progressive neurological disorder that affects movement, mood, and cognition. A knowledgeable neurologist, certainly one who specializes in movement disorders, can accurately assess the stage and progression of the disease, tailor treatment plans to the individual’s needs, and monitor for changes that may require adjustments in therapy. Given the range of symptoms and responses to medication, having a trusted specialist ensures that management strategies are both evidence-based and responsive to the unique course of the disease in each person.

In addition to providing medical care, a good neurologist acts as a central figure in a patient’s care team, coordinating with physical therapists, occupational therapists, mental health professionals, and support networks. This whole wellness approach helps patients maintain the highest possible quality of life and independence. Furthermore, an informed neurologist can guide patients and their families through the evolving landscape of clinical trials, new therapies, and emerging research, offering hope and access to cutting-edge treatment options. Building this relationship early in the diagnosis can empower individuals with Parkinson’s to make informed decisions and feel supported throughout their journey

Please reach out to info@parkinsonsnebraska.org or check our resources tab for neurologists in your area!

Parkinson’s Disease: What you should understand!

7/10/2025

Understanding Parkinson’s disease is crucial for each patient because the condition manifests uniquely in every individual. While common symptoms such as tremors, stiffness, and slow movements are widely recognized, the specific combination and severity of these symptoms can vary dramatically. Some patients may experience primarily motor symptoms, while others may face more significant non-motor challenges, such as depression, anxiety, sleep disturbances, or cognitive decline. This variability means that no two cases of Parkinson’s are identical, and treatment plans must be personalized to address the distinct needs, experiences, and goals of each person.

Additionally, understanding one’s own version of Parkinson’s empowers patients to take an active role in managing their health. Awareness of how the disease progresses in their own body can help individuals communicate more effectively with healthcare providers, make informed decisions about therapies, and adjust lifestyle factors that may influence their quality of life. It also encourages patients to track symptoms over time and recognize changes that may require medical attention. Ultimately, personalized understanding fosters a sense of control, leading to more effective self-advocacy and better long-term outcomes.

Seek a neurologist who will answer questions and find a local support group!

For help, email info@parkinsonsnebraska.org

Parkinson’s Disease: What should I know?

6/16/2025

If you have Parkinson’s disease, the most important thing to know is that it’s a progressive but manageable condition, and early, consistent, and individualized care makes a major difference in your quality of life. There is no cure, but medications (like levodopa, dopamine agonists) and lifestyle changes help manage symptoms. What works well for one person may not for another. Regular monitoring and adjustments are vital. Here are some key factors:

Exercise Is Crucial
Regular physical activity, especially balance and strength training (e.g., tai chi, dance, boxing), slows symptom progression and boosts mood and cognition.
Start a routine as early as possible and stick with it.

Build a Strong Care Team
A neurologist (ideally a movement disorder specialist), physical/occupational therapists, speech-language pathologists, mental health professionals, and social workers can provide targeted support.
Don’t go it alone—lean on your team and educate family/friends.

Stay Proactive and Educated
Parkinson’s varies widely between individuals, so being informed helps you advocate for your needs.
Join support groups, learn about the disease, and track your symptoms.

Please reach out to info@parkinsonsnebraska.org to find an exercise group, practitioner or support!