Care Partner Resources
COVID 19 Update: This time of social distancing does not have to mean social isolation. We have compiled a list of online support groups and discussion boards from our national and local partners for easy access in one, easy to find place. These programs can help keep you engaged and connected with the community from right inside your home.
Please check back as we will continue to add resources as they become available.
Care Partner Support Groups
Caregiver Forum
This will be a online meeting designed to provide support for caregivers who may not have access to their usual support systems right now due to COVID-19. If you provide care to a Person with Parkinson’s, please join us!
Date: Wednesdays
Time: 2:00 pm- 3:00 pm
This group is available with a free PDWELL membership. Register here for access to this free resource.
Parkinson’s Caregivers Support Group
The Parkinson’s caregiver support group meets once a month to provide support to those caring for people with Parkinson’s disease.
Date: First Monday of each month
Time: 7:00 pm
Registration is required to access this FREE support group. Click here to register today!
Resilience Online!™ Support Group: Care Partners
Join Anissa Mitchell, LCSW for a virtual gathering of people impacted by movement disorders. You are invited to join your peers on Zoom to share tips, ask questions, and get social despite social distancing.
Date: Thursdays
Time: 4:30 pm
Launch the Resilience Online™ Support Group for Care Partners here.
Resilience Online!™ Support Group: Individuals with Loved Ones in a Facility
Join Anissa Mitchell, LCSW for a virtual gathering of people impacted by movement disorders. You are invited to join your peers on Zoom to share tips, ask questions, and get social despite social distancing.
Date: Fridays
Time: 3:00 pm
Launch the Resilience Online™ Support Group for Individuals with Loved Ones in a Facility here.
Smart Patients Caregivers Community
The Family Caregiver Alliance has partnered with Smart Patients to create the Smart Patients Caregivers Community. This online community is a discussion board for patients and caregivers to share interact, and learn from each other in a safe, supportive environment.
When you join a discussion group, you’ll connect with other people who share your same interests, challenges, and hopes with a variety of topics. This offers an alternative to in-person support groups!
Care Partner Webinars
Thursday, August 20 Wills, Trusts, and Estate Planning
Thursday, November 19 – Planning for the Holidays: Hassles, Hobbies, and the Hallelujah Chorus
The Parkinson’s Foundation is hosting a quarterly Care Partner Town Hall. The Town Hall format will cover some of the Parkinson’s Foundation Helpline frequently asked questions in a one-hour program.
Wednesday, August 26 12:00 pm – Strategies for Effective Communication
This series kick-off will focus on strategies to help care partners, friends, and family effectively connect and communicate with their loved one with Parkinson’s disease.
The Care Partner Town Hall is a free event, but registration is required. Register here
Wednesday, August 19 1:00 pm – A Crash Course for Care partners: How to help People Receiving LSVT BIG and LOUD
Do you help support and care for someone who is receiving LSVT LOUD or LSVT BIG? You can be a key part of optimizing their success. Learn our top tips on how to help support daily exercise practice, homework and carryover of a louder voice and bigger movements into daily life. Also hear ideas of how to motivate and encourage, as well as what NOT to do!
This event is free but registration is required. Register here.
Click below to explore more resources:
Exercise classes
Support Groups
Therapy
Online Resources
Young Onset Resources